“She Doesn’t Look Blind to Me” The Blind Actor Phenomenon, Essay 23 of #52essays2017

In my last essay inspired by attending the NYC Disability Pride Parade, I presented a small rant on the dearth of actors with disabilities representing themselves on television. And I got to thinking about how, in a troubling landscape, I can say with as few sour grapes as possible, that the blind actor is pretty much non-existent, excepting of course in a certain Vanda commercial starring me!

Blindness is a very weird disability since, without the accoutrements of white cane or guide dog, it doesn’t look like much, which is why, I suppose, I receive comments on the Vanda iSpot page doubting my authenticity. Here’s an example from George:

“Doesn’t look blind to me. Her eyes are following the action. She at least has some vision.”

And another from Rhonda:

“This is an actor!!! They need real blind people. They stopped this one with the actor woman. Now they have an Afganastan [sic] vet.”

For some reason, Ronda believes in the vet, but not me, the assumption is that the vet is a real blind person, which in fact he is. Mike and I shot our commercials at the same time and chatted during lunch once. But why getting blinded in war is more credible than having an eye disease remains a mystery.

I am not alone in being denied authenticity. On Molly’s Dove Shower Foam iSpot page, I read a comment from Roseanne:

“don’t think she’s blind”

And another from Carol:

“Same she doesn’t look hummm noract like any actual blind person I know and I have friends and family blind from infancy to loss of sight from wound in war to elderly! And lost sight even to being diabedic [sic]. She doesn’t appear to act in any way as they do”

Spelling mistakes and typos aside, I accept these comments as representative of a certain percentage of the American sighted population. Happily for Molly (and human kind), there are others who believe. Someone took the time to Google her and discovered her authenticity. From Shelley:

“I googled it and I think her name is Molly Burke and she has retinitis pigmentosis [pigmentosa]. You gradually lose your eye sight when you have that. My grandma had it along with two of her sisters. She was declared blind in 1967 but didn’t completely lose all her sight until 10 or so years later.”

Indeed Molly Burke is authentic and has a popular YouTube channel in which she talks about life with blindness.

I wonder if others in the disabled world get victimized by such able-bodied scrutiny. Probably. And yet there are disabilities that are hard to fake. No one doubts that Peter Dinklage, who plays Tyrion Lannister in Game of Thrones, is the real deal.

Part of the problem is that able-bodied actors have been portraying and often winning Academy Awards for their performances of disabilities for so long that seeing someone who is actually disabled defying stereotypes–not looking blind, for example–that when they see the real thing, they doubt the authenticity and somehow feel duped. It’s odd that people cannot imagine a real blind actor, but only real blind people, as if actors were not also people.

For my Celebrating People With Disabilities in Film and Television article I wrote for NYFA earlier this month, I was delighted to find enough actors with disabilities that I could not fit them all into my space limitations. However, beyond the TV ads, I had to stretch for a blind actor.

 

Kitty McGeever starred in the long-running “Emmerdale,” but sadly died age 48 as a result of many health issues. McGeever was the first blind actor to star in a British soap. Having trained at RADA, she lost her sight at the age of 33, shortly before winning her role on “Emmerdale.” She described her character as “naughty” and “manipulative in the extreme” to the BBC, and added, Lizzy “uses her disability to her advantage and then disregards it to her advantage whenever and whichever way she chooses.

 

There’s also a young French actor Melchior Derouet, who starred opposite Natalie Portman in Paris Je T’aime. Here’s a fun Hollywood Reporter article about him navigating Cannes.

When I was called to audition for the part of Reba on NBC’s Hannibal, I dreamed of not just the stardom and money, but the idea of doing talk shows and the like, speaking as myself to a mass audience of sighted people about my particular flavor of blindness. How delicious, I thought, and important, to offer a perspective that might not square with the usual perceptions! I also imagined insisting on the importance of having people represent themselves on TV, providing more nuanced and authentic representations, representations that have behind them, at least to some extent, experience that reaches beyond stereotypes. This is important not only regards viewers but also the immense cast and crews on a television or film set.

The director of the Vanda ads, Malcolm Venville, told me on our first day of shooting that how I moved was so interesting. That it was so different from how a sighted person moved, and yet subtle and not what you see in the media–not superhuman and not slapstick. The cast and crew’s experience of a blind actor can only help to explode stigmatic portrayals. There is hardly a mainstream blind actor working today, and yet the portrayal of blindness is practically a staple on the TV series, where main characters are struck blind at alarming rates, usually just before jumping the shark–yes, I’ve got Fonzie’s Blindness in mind.

But things they are a changing, and I’m excited for the blind kids coming up. Soon, I hope, it will be as frowned upon to have a blind character played by a sighted as to run around in blackface. But for now, we must be satisfied with pharmaceutical ads and training videos… Below you can watch my friend George Ashiotis and I tell poll workers how to treat people who are blind!

 

*This is #23 of #52essays2017. Check out #22 Disability Pride Parades Matter 2, about my happy march up Broadway flying my freak flag with thousands of others!*

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From Derrida to Diderot: The Philosophe’s Dream, Essay 20 of #52essays2017

Thinking back to where The Spectator & the Blind Man all started–and by all I mean dissertation, stage production, literary endeavor–it was probably with Diderot. And I believe I discovered Diderot in the pages of Derrida:

Diderot by Louis-Michel vanLoo, 1767.“I write without seeing….. This is the first time I have ever written in the dark . . . not knowing whether I am indeed forming letters. Wherever there will be nothing, read that I love you.”

-Diderot, Letter to Sophie Volland, June 10, 1759

I first encountered this quote in a book called Memoirs of the Blind, a perhaps ironically beautifully visual book about blindness and the self-portrait by Jacques Derrida, written for an exhibition that he curated at the Louvre.

Denis Diderot, one of my all-time favorite dead white guy writers, would definitely be at my fantasy dinner table for witty repartee and bon vivantism. As I’ve now surely quoted a million times and cannot even remember where I originally read it, he died reaching for the cherry compote (the dessert), that is, he died wanting more of the good stuff.

Encyclopedie de D'Alembert et Diderot Premiere Page.Diderot is probably most famous as one of the editors and main contributors to the Encyclopédie (1751-66), a work that flouted notions of high and low disciplines by putting Christianity alongside Chemistry , Farm Laborer alongside Poet.

But even before that great endeavor of promoting equality, an endeavor that often seems to sing the early song of revolution, Diderot was a young man with man of letters stars in his eyes and he wrote a book inspired by the thoughts of the great Voltaire and other early luminaries of what would come to be known as the Siècle de Lumière. The Age of Enlightenment is much maligned in certain circles for its idealization of rationalism and all the woes of modernity, but Diderot (as our opening quote suggests) reveled in the dark and unfathomable parts of humankind.

Diderot’s Letter on the Blind for the Use of Those Who See (1749) suggested, among other things the doubtfulness of God (Diderot dabbled in deism), and put his controversial notions into the mouth of a real life person, an English mathematician named Nicholas Saunderson, who inherited the Lucasian Chair from none other than Newton, but not his quirky but nonetheless strident beliefs. Saunderson was famously irreligious, but the deathbed conversation Diderot puts in his mouth–not to mention the glorious prophecy of Darwin’s theory of evolution–was indeed fabricated.

Here’s a little sample of the offensive dialogue:

”Consider, Mr. Holmes,” he added, “what a confidence I must have in your word and in Newton’s. Though I see nothing, I admit there is in everything an admirable design and order. I hope you will not demand more. I take your word for the present state of the universe, and in return keep the liberty of thinking as I please on its ancient and primitive state, with relation to which you are as blind as myself. Here you will have no witnesses to confront me with, and your eyes are quite useless. Think, if you choose, that the design which strikes you so powerfully has always subsisted, but allow me my own contrary opinion, and allow me to believe that if we went back to the origin of things and scenes and perceived matter in motion and the evolution from chaos, we should meet with a number of shapeless creatures, instead of a few creatures highly organized. I make no criticism on the present state of things, but I can ask you some questions as to the past. For instance, I may ask you and Leibniz and Clarke and Newton, who told you that in the first instances of the formation of animals some were not headless and others footless? I might affirm that such an one had no stomach, another no intestines, that some which seemed to deserve a long duration from their possession of a stomach, palate, and teeth came to an end owing to some defect in the heart or lungs; that monsters mutually destroyed one another; that all the defective combinations of matter disappeared, and that those only survived whose mechanism was not defective in any important particular and who were able to support and perpetuate themselves.

” Suppose the first man had his larynx closed, or had lacked suitable food, or had been defective in the organs of generation, or had failed to find a mate, or had propagated in another species, what then, Mr. Holmes, would have been the fate of the human race? It would have been still merged in the general depuration of the universe, and that proud being who calls himself man, dissolved and dispersed among the molecules of matter, would have remained perhaps forever hidden among the number of mere possibilities. If shapeless creatures had never existed, you would not fail to assert that none will ever appear, and that I am throwing myself headlong into chimerical fancies, but the order is not even now so perfect as to exclude the occasional appearance of monstrosities.” Then, turning towards the clergyman, he added, “Look at me, Mr. Holmes. I have no eyes. What have we done, you and I, to God, that one of us has this organ while the other has not?”

Lettre sur les Aveugles (Letter on the Blind).So this, along with his bawdy yet still philosophical tale The Indiscrete Jewels–about a prince who gets his hands on a ring which, when turned upon the nether regions of ladies, gets them to talk, indiscreetly about their escapades–published around the same time, landed Denis Diderot in the dungeon of Vincennes, which is where we find him in the following piece. My literary offering is the first in The Spectator & the Blind Man series.

Diderot, a lover of women, music, the theatre and all that Paris had to offer did not relish his time in prison and, in order to avoid a future return, did not publish his literary works, such as Jacques the Fatalist and d’Alembert’s Dream, for which he is mostly known today. In other words, Diderot may have helped to sow the seeds of the Revolution, but, after Vincennes, he mostly avoided angering the regime by keeping his potentially controversial works in private circulation. Diderot enjoyed a good long life and died just five years before the storming of the Bastille.

The following is my piece of flash fiction imagining Diderot’s explanation to a friend for why he would do his best to never piss the authorities off again. The reading is by George Ashiotis with musical composition by Alabaster Rhumb.

 

THE PHILOSOPHE’S DREAM

Dungeon of Vincennes, 1749

No. I am no Socrates, no martyr to truth. A fishmonger of truths more like. My mistake was in allowing the odors to reach royal nostrils. Henceforth, I peddle my stinking truths underground or, if they are compliant truths, I shall dress them in suitable costumes, sufficiently powdered and pinned to ingratiate themselves to this foolish and frivolous city of mine. Ah Paris! How I adore your decadence. Let me die reaching for the cherry compote!

I digress. I must tell you about last night’s dream that frightened me nearly to death, for, though you may still despise me, I wish you to understand why I scrape the dirt floor with my chin, why I will do or say or write anything they ask of me in order to be out of here. Why I will denounce, without regret, my little Letter on the Blind.

Last night I woke out of sleep into the body and mind of Saunderson. Yes, my blind mathematician whose deathbed non-confession has stirred so much ire. I awoke into his blindness and found myself confronting not only the fumbling clergyman Holmes, but also the governor who has seen fit to thrust me into this cell.

The blindness I experienced was like that of Milton’s darkness visible, a blindness not of eyes but of mind. Understand me. I felt sharp as a whip, as brilliant of intellect as Saunderson must have been to inherit the Lucasian Chair of Mathematics (a seat held by no less a luminary than Newton) but there were no longer any images, no colors, no pictures of beauty or ugliness to be found in this Diderot-head of mine. All memory of seeing had evaporated, and it was this blankness that frightened me almost to distraction. The deprivation terrified me even as I enacted the very dialogue that has landed me in prison.

Nicholas Saunderson.As Saunderson I said, “Ah, sir, don’t talk to me of this magnificent spectacle, which it has never been my lot to enjoy. I have been condemned to spend my life in darkness, and you cite wonders quite out of my understanding, and which are only evidence for you and for those who see as you do. If you want to make me believe in God you must make me touch Him.”

“Sir,” returned the clergyman, “touch yourself, and you will recognize the Deity in the admirable mechanism of your organs.”

I countered, “All that does not appear so admirable to me as to you. But even if the animal mechanism were as perfect as you maintain, what relation is there between such mechanism and a supremely intelligent Being? If it fills you with astonishment, that is perhaps because you are accustomed to treat as miraculous everything which strikes you as beyond your own powers. I have been myself so often an object of admiration to you, that I have not a very high idea of your conception of the miraculous. You think a certain phenomenon   beyond human power and cry out that it must be the handiwork of a god.”

Next came his most persuasive argument, “Men of the highest genius, even Newton, have been impressed by the wonders of nature and recognize an intelligent being as its creator.”

As determined by my folly, I answered, “Seeing nothing, I will acquiesce to you and Newton an admirable design and order. I hope you will not demand more. I take your word for the present state of the universe, and in return keep the liberty of thinking as I please on its primitive state, with relation to which you are as blind as myself.”

Finally, as I have written to my sorrow so I spoke in my dream, “If we went back to the origin of things and perceived the evolution from chaos, we should meet with any number of shapeless creatures. In the first instances of the formation of animals some were perhaps headless and others footless, some stomachless and others lacked intestines. Only those not defective in any important particular survived and perpetuated themselves.”

I stopped his protestations before they started, “Perhaps you will assert that deformed creatures never existed and that I am throwing myself headlong into chimerical fancies, but the order is not even now so perfect as to exclude the occasional appearance of monstrosities.”

I turned, my Saunderson, towards the clergyman and performed what is, in my Letter on the Blind, the coup de grâce. “Look at me, Mr. Holmes. I have no eyes. What have we done, you and I, to God, that one of us has this organ while the other has not?”

Suddenly my fanciful dialogue shifted to nightmare and, instead of the tears gushing from the eyes of the sympathetic clergyman, the menacing voice of the governor materialized from the void. “these are lovely sentiments my dear blind philosophe. They will nicely condemn you in the court of God and man. We will take your deformity into consideration by removing the mask that we offer unblind (if such things exist) heathens. It will do the people good to see your vacant eyes roll with your head. Such a treat to see a monster (as even you have named yourself) demolished.”

With the demonic intoning came the arms out of hell to lift me onto the block where my neck was stretched. The whoosh of the upswept blade penetrated my too-sensitive ears and the steel crashed down. Only then did I wake once more into this seeing body, screams strangling my throat with mingled horror and relief.

*This is essay 20 of #52essays2017. Read #19 Sometimes a Snake is Just a Snake*

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