1984: Late to the Party Again, Essay 6 of #52essays2017

Menacing cover of a Czech copy of 1984In the year 1984, I was in sixth grade, a scholarship child in a private girl school. The eighth graders were reading George Orwell’s 1984 and had plastered the walls with images of our headmistress that read, “Big Sister is Watching YOU.” We didn’t know what it meant, but we understood that it was witty and smart and that that group of girls was particularly beloved by the teachers, headmistress and principle and could get away with such things. Our class, dominated by girls whose anger and sadness ruled their intelligence, was not, I understand now, so beloved.

Though I’d started having trouble seeing the blackboard back in fourth grade, it was not until sixth that I began having trouble reading print. One time in history class, which I loved, I was taking a pop quiz and stared at the purple ditto ink, astonished and afraid because I couldn’t make out a single word. I raised my hand and told Mrs. Clark in a nervous whisper that I wasn’t able to read it. She turned the paper over and there was the quiz! We laughed. I told that story many times in those years when my eye disease seemed merely an odd anomaly, a predicament that presented problems easily solved in a class of 40 with smart caring teachers.

It was also in sixth grade that I was presenting a book report with my friend (with whom I would in another year or two vandalize the school one night with shaving cream), reading notes we’d written with pale blue ink that I suddenly could not read, and I stumbled over my part of the presentation. She laughed and snatched the notes away. It was not mean-spirited. She simply took control of what I’d not been able to do. I stood, as I would so often stand through my teens and twenties, very still, mortified. It was my great shame not to be able to read anymore.

In earlier grades, I’d been a great reader, a cocky little reader who’d gleefully raise her hand to read aloud and took pride in reading ahead while my classmates labored. I’d show off the adult books I was reading, pilfered from my mother’s bookcase, Agatha Christie mysteries, Gone with the Wind.

Some of my favorite memories of childhood are of reading in special places. I remember finishing Little Women while sitting in the branches of a tree in the huge shared backyard of my grandmother’s apartment complex. I remember reading the end of Jane Eyre, tears rolling down my face in the window seat of the library on 9th Avenue, where I’d wait for my mother to get off work at the clothing boutique around the corner on Clement Street. And I remember reading Poe stories on the bus ride out to the SF Zoo to volunteer on Saturday mornings.

By the time I was in eighth Grade, and it was our turn to read 1984, reading was no longer a pleasure but a chore. I never finished it. I bluffed my way through. If I had good lighting, was not tired, and did not mind how slow it went, I could still read for another year or two, but mostly, the act of scanning words with eyeballs had a hole in it. Where the words should be, there was nothing.

I did not get into the fancy high schools of my peers. I went instead to my neighborhood public school, where my mother had gone before me. I received no help and my rebel self wanted none. I had my smarts and the classes were not challenging. They sucked and I hated it all except for ninth grade English Honors.

Mr. Davis squeezed a few more reads out of me–I remember being particularly engrossed by Green Mansions. He had us watch Cocteau’s La Belle et la Bete, which made a lasting visual impression on me though I could not read the subtitles. He also kept alive for a little while longer the pleasure I took in writing–I’d thankfully taught myself to touch-type the year before on my mom’s manual typewriter. For his class I typed up the last story I would write for a long time. It was about two girls who’d run away. They sat smoking in the McDonald’s on Powell Street. Only one had a pang of regret for the childhood lost and the certainty she’d never go back. I believe that was my last A until college.

Some paltry years of learning flew by, with little school attendance and much teenage debauchery. I cut classes and smoked cigarettes in a café down the street with my best friend–the best friend I still have and the only good take away from that school other than Honors English. I still fancied myself intelligent, a writer. I think I even sometimes dreamed of getting a doctorate someday.

But words and faces were slipping from me: wandering the used bookshop with my friends meant faking it. Looking in used record shops meant looking for recognizable covers with large print. Watching TV meant pretending to see what was going on if it were more than a few feet from me. I took it all in as shame and anger and nursed it with booze and candy.

Doctored newspaper clipping of Tony Randall handing RFB&D Achievement Award to GodinWhen I finally dropped out of high school, it was in order to move on to City College. High School was not working. Finally I got help. Finally I learned about an organization called Recording for the Blind and Dyslexic from whom I would receive an achievement award upon my college graduation some years down the line, handed to me in a fancy ceremony in NYC by Tony Randall. Now RFB&D is called Learning Ally and students don’t have to wait for their digital downloads–blind kids are so lucky these days!–but back in the pre-digital stone age, they sent clunky blue boxes of recorded books on tape cassettes via snail mail.

The first book I remember listening to on the plastic companion cassette player was 1984, the aborted read from years earlier. I was completely hooked and listened to it over the course of a night. The best part about reading by listening is that you do not have to worry about your eyes getting tired.

But those little blue boxes were limited. It takes a long time to have people read books onto tape and to process them. It took time for them to arrive in the mail, a delay of one to three weeks. So that sometimes, by the time I received them, I’d forgotten what prompted me to order them. I could not borrow books from friends and I could not often even get ahold of those they were reading, but at least I could read some. Eating chips or smoking while listening to novels was my great escape.

It was wonderful to have access to books again, but there was shame in those blue boxes, shame in listening to books with my ears instead of reading with my eyes. I hid them away from my friends as much as possible.

Although I still listen to books, having them come to me in a digital file that I listen to in a ubiquitous and perfectly quotidian iPhone has changed everything. The shame is gone, or nearly so. There are so many books available to me through blind organizations such as Bookshare, or through universally available sources such as Project Gutenberg and Kindle, that I can get ahold of most everything I want to read quickly and easily. Others I can scan. In fact, I have so many books on my phone that it has, I’m afraid, made me a little more deficient in attention than I once was, but I’ll take the downside with the many upsides of being able to be current with my intellectual interests. And also able to keep up with what’s going on in the world’s intellectual meanderings, such as they are.

This time, when the call to read 1984 shot around the internet, I was able to download and start reading it immediately. Naturally I’m horrified and darkly amused by the ludicrous behavior of this president and his lackeys with their “alternative facts,” but in some ways I’m more concerned about the hypocrisy of so many of my peers who seem already to have forgotten the jokes and apathy that led up to the election. It is trendy to bash this sad sack in the White House but unthinkable to question one’s own culpability.

Honestly, I’ve shied away from the news since the new presidency. An avid listener to NPR since the Gulf War in 1990, last fall found me angry at my radio for the first time for taking Trump seriously on the one hand, and as just an impossible joke on the other. That so many people I knew felt mostly apathy before the election and have turned fanatical since also feels like a betrayal on the order of 1984 itself. “‘The only evidence is inside my own mind, and I don’t know with any certainty that any other human being shares my memories.'”

The connections between 1984 and the current state of affairs in politics that put the 68-year-old novel at the top of Amazon’s Bestseller list is obvious, but it ought to be recognized as complicated, as our hero Winston Smith is complicated. If Trump being in the white house suggests the regime of Big Brother, I think we ought to allow for the possibility that we are like the very flawed Winston who can in one breath cling to his humanity as the only weapon against the Party:

“‘If you can feel that staying human is worthwhile, even when it can’t have any result whatever, you’ve beaten them.'”

And in the next throw away that humanity in the thoughtless acceptance of rebelling:

“‘You are prepared to cheat, to forge, to blackmail, to corrupt the minds of children, to distribute habit-forming drugs, to encourage prostitution, to disseminate venereal diseases–to do anything which is likely to cause demoralisation and weaken the power of the Party?’

‘Yes.’

‘If, for example, it would somehow serve our interests to throw sulphuric acid in a child’s face–are you prepared to do that?’

‘Yes.'”

These words will come back to haunt Winston in the Ministry of Love even before the final betrayal, suggesting an irony that in the very act of rebelling he steps that much closer to those he is rebelling against, towards their destructive utilitarian philosophy that deems the most heinous acts worthy if they further the cause. To lose one’s humanity in the face of fear and anger is too easy and more dangerous if left unrecognized.

 

*This is essay 6 of #52essays2017, written with all four senses and remembered sight. Read my previous essay Ylang-ylang: Calming the Panic of Love & Memory here*

What I See/Saw I: Hallucinations (Essay 2 of #52essays2017)

I am blind, but that does not mean I live in darkness, and I’m not just talking metaphor here. These days the visionscape confronting me sparkles and undulates, with greater or lesser intensity, constantly, veiling the world beyond with simple and complex hallucinations.

pixelated closeup of Godin's eye with green filter

The brilliance of my visionscape is not less intense in a dark room than in a brilliant sunny outdoors, only there are maybe more facets to it: there is darkness around the edges that gets washed out in a white out of a brilliant day. The pixelated cosmos in which I dwell sometimes takes on a color scheme, as if the whole thing were lit by stage gels. Sometimes I wake up and find my day washed neon pink, other days are teal. Sometimes the palette divides into contrasting colors, red occupying much of the upper left quadrant and green the lower right, or other times it is orange and cobalt.

My recent forays into the wonderful world of aromatics has proved to be a way to take control of what had heretofore been quite out of my control. Apparently I’m not very original in my synesthetic reactions but it’s fun to open a bottle of lavender essential oil and see my world turn violet, or peppermint and watch it turn electric blue.

Beyond or behind all the shimmering and swirling, I get glimpses of the world some people might call the objective reality of sight. That objective reality reveals itself to me now as blobs of light covered over by a fabric of swirls and pulsations.

For me there is no dark. No black. Never.

There is brightness and then there is more brightness. The light of a lamp lingers on my destroyed retinas for minutes, so that even if I have seen the lamp on–verified its onness by rolling my eyeballs to place the lamp in one of the chinks of far peripheral vision that still remain to me, when I turn it off, a blast of light remains to trick me, and sometimes, I must use my hand to verify that the bulb is not still making heat. But even when the physical light remnants disappear completely, there is the overwhelming perception of a pulsating kaleidoscope of pixelated light, leaving the dark room anything but dark.

The tears in the fabric of disease that remain to me to allow actual, external light to enter my visionscape are sometimes a help and sometimes a distraction. Oftentimes I can see points of light in my far periphery, lightbulbs in the distance that can help guide me in the right direction, but I cannot see the furniture that stands directly in my path. As I mentioned in my previous essay, my poor eyesight has never had anything to do with blurry vision. Always it has been a lack of information.

Much of what I see, especially in my peripheral vision, is undulating hallucinations that resemble the wavy floaters of the normal eye (as I remember them). They skitter randomly as sickle-shaped phenomena that are unrelated to external reality, and do not change much from day to night, light to dark, open or closed eye. In their crowdedness, and in their geometric breathing, they remind me of staring at wallpaper on acid way back when. I haven’t done any psychedelics for many years, I promise, but my visions have gotten pretty trippy!

One time, maybe five or six years ago, I was laying on my bed in the daytime in a hungover state, and suddenly a lurid parade of eighteenth century ladies jittered across my visionscape with painted lips formed into ironic smiles. They looked in my direction as they passed–an endless train of cartoonishly garish ladies moving across my field of vision. I remember feeling a vague sense of uncertainty but no fear. The vision lasted a minute or two at most, presenting (I understand now) my bored visual cortex with some much-needed stimulation. I had more vision then than now, but that was around the time that I think of myself as moving from being visually impaired to blind, so that although I could still see the bright window quite clearly behind the hallucination, and maybe a bit of the mirrored vanity beyond, I did not spend a great deal of my life looking at stuff.

I did not name this a hallucination or recognize it as such until my buddy Benjamin asked me if I hallucinated–that he’d heard on NPR about a condition that affects people that lose their vision late in life. That’s when I remembered the ladies in my bedroom and named it a hallucination. Since then I’ve had many more such experiences and have read Hallucinations by Oliver Sacks. “Silent Multitudes” is the first chapter of that book and is dedicated to the phenomenon.

Sacks begins the chapter by describing Rosalie, a woman blind for many years, who suddenly starts experiencing hallucinations and fears for her sanity. To his question “what do you see?” she answers:

“‘People in Eastern dress!”…In drapes, walking up and down stairs … a man who turns towards me and smiles, but he has huge teeth on one side of his mouth. Animals, too. I see this scene with a white building, and it is snowing–a soft snow, it is swirling. I see this horse (not a pretty horse, a drudgery horse) with a harness, dragging snow away … but it keeps switching…. I see a lot of children; they’re walking up and down stairs. They wear bright colors–rose, blue–like Eastern dress.'”

Sacks assures her that she is not losing her mind, but that she is experiencing Charles Bonnet Syndrome, named for a Swiss naturalist, who first described his father’s late-life visions and then experienced them himself when his own vision failed.

Sacks distinguishes between simple and complex hallucinations, which I have come to understand in my own experience. Under normal waking conditions, the simple hallucinations of undulating and pixelated designs breathe and skitter around with such constancy that I do not think about them unless I’m trying to put something into my periphery where I still can perceive some light and movement–when they seem to be in the way of my perception.

My complex hallucinations (as Sacks calls those that have recognizable content, such as people or animals–nameable objects and exhibit the crowding suggested by the chapter title “silent multitudes”) usually come on in the early morning hours after a night of insomnia. They appear without any mental prompting and seem to have nothing to do with my psychological state, if the wakeful tiredness be excepted. When they pop up, it is as if a switch turns on and the whole of my visionscape shifts for a few moments into an outrageous circus of jerky, cartoonish acrobats, jugglers, horses, and countless other abstract big top-inspired shapes and unnamable creatures that tumble with great rapidity into the center of my vision and back out again, as if they are in a tangled loop that keeps repeating with subtle and complex differences. The quality is of a cartoon or of an old-school video game.

One creature that makes an occasional appearance in both the insomnia-inspired complex hallucinations and in my everyday jumble of simple hallucinations is a red Space Invaders critter that marches from my far left periphery towards my nose.

This is so frustrating to write about because it seems weirder and more bombastic than it feels. It’s easier to simply say, “I can’t see.” But onward.

Like the everyday hallucinations, the early morning complex hallucinations are also not affected by my eyes being open or closed, though, if the sky is lightening, a sliver might show behind without changing any of it), and I can look around the scene to examine the vibrating tableau, as you might scan a computer screen if it were placed too close to your face.

As Sacks writes:

“I observed with Rosalie (as with many other patients) that while she was hallucinating, her eyes were open, and even though she could see nothing, her eyes moved here and there, as if looking at an actual scene. It was that which had first caught the nurses’ attention. Such looking or scanning does not occur with imagined scenes; most people, when visualizing or concentrating on their internal imagery, tend to close their eyes or else to have an abstracted gaze, looking at nothing in particular. … one does not hope to discover anything surprising or novel in one’s own imagery, whereas hallucinations may be full of surprises. They are often much more detailed than imagery, and ask to be inspected and studied.”

I find this distinction between mental imagery and hallucinations very helpful, as I have struggled to describe the difference to friends. I also have very intense mental imagery, often arising from internal reflection or prompted by outside stimuli–a novel or movie soundtrack can stimulate this imagery, but this does not present at all like the hallucinations. And yet both keep me tethered to the visible world, to my visual self.

I’m so stuck being a visual person that it is difficult for me to write anything very interesting without seeing it with my inner eye. Yet my inner eye has been so disconnected from actual sight for so long, it may be that I and others ought not to trust it. This is the struggle I find in my writing, which is why I write this now: I doubt my ability to tell you what I see. Have I had any success?

 

*This is essay 2 of #52essays2017, written with all four senses and remembered sight. Check out essay 1 “In the Beginning Were the Eye Doctors” here*

Helen Keller Quotes Explosion

Star of Happiness promotional shot. Godin kneeling in silver and black with loop pedals. Cathryn Lynne Photographer.You kneel on the floor with two loop pedals in front of you. Above you hangs a projected red curtain and an empty spotlight. you say, “Oh, fuck it,” and hit one of the pedals, which causes The Star of Happiness theme song instrumental interlude to play.

“I was born with a degenerative eye disease called…” you hit the loop pedal twice quickly in order to catch “cone-rod dystrophy.”

“This means that, since I was ten years old, I’ve been going very slowly blind. I’ve occupied many positions on the sight/blindness continuum. I’m more blind than sighted now, but it’s not always been like this. Perhaps for you, going blind is the scariest, or at least one of the scariest, things imaginable. For me, thinking about losing another sense, especially hearing, is really scary.

“When I started reading books by and about Helen Keller, I suddenly developed a ringing in my ear. It was likely psychosomatic. (Wouldn’t have been the first psycho symptom I’ve exhibited.) Around that time, I had a dream: I was Helen, in the last years of her life when she was confined to bed by old age illness. We were insensible to sights and sounds As she had almost always been, but now, unable to move, we were deprived of the incessant, impulsive force that had launched her, a crazy deaf blind caterpillar, feelers electrified and electrifying, meteorically into a world that could not get enough of her, and of which she also could not get enough.”

Behind you on the screen, images of Helen from earlier in the show slowly spin around the projected spotlight, then break away.

“Now, after living nearly ninety years of a life that included such varied occupations as…” you pick up “political activist” and “vaudeville performer” into the loop and continue, “and ” after World War II, after America dropped bombs etc., she became an officially sanctioned, unofficial…” you catch up the following into the loop, “ambassador of American peace and good will,” and continue. “Two million Japanese welcomed her when she visited decimated Nagasaki and Hiroshima. They loved her that much!

“but my dream was set in a time past all that, so that I experienced what it would be like to have a sensory existence that extended no farther than the cocoon like bedding in which we were wrapped. Excepting slight tremors and vibrations through the floor, And the occasional touch of an attending hand…” you hit the loop pedal, “THERE WAS NOTHING.”

“However, in the double visioned way dreams sometimes unfold, I was trapped in her immobility with her and seeing her inert body as if it were an out of body experience, without much height or distance. The perspective was split: both inside feeling out and outside looking in.

“The in-body perspective was that of the cornered small animal trembling with the desire to escape, that of the suddenly quadriplegic wishing impotently to die, that of the tongueless victim left alone to tell her tale.

“While the out of body perspective was that of the achingly detached observer, that of the nonsensical buzzing fly, that of the sole audience at a wake. From here, the bed on which we lie, appears, in my mind’s eye, to be a tabula rasa, our body a lumpy virgin landscape.

“But this is my nightmare, not Helen’s. Helen believed that there was an eternal, heavenly, fully sensing body waiting for her to step into after death.”

You hit the pedal and pick up what Helen says, “It gives me a deep, comforting sense that things seen are temporal and things unseen are eternal.”

You say, “Now she is the star of happiness to all struggling humanity.”

Helen says, “Alone we can do so little, together we can do so much.”

You say, “If Helen Keller fell down in the woods would she make a sound?”

Helen says, “I was strong, stubborn, indifferent to consequences. I knew my own mind well enough and always had my way, even if I had to fight tooth and nail for it.”

Helen says, “I am not dumb now.”

You put down the mic and hunch over your workstation on the floor. You feed Helen Keller quotes from one pedal into the other, adding to the increasingly chaotic mix. Above and behind you in the projected visionscape, images likewise become disjointed and frantic.

Helen says, “Every one of us is blind and deaf until our eyes are opened to our fellow men, until our ears hear the voices of humanity.”

Helen says, “It is not required of every man and woman to do or be something great. Most of us have to be content to take small parts in the drama of life.”

Helen says, “I seldom think about my limitations, and they never make me sad. Perhaps there is just a touch of yearning at times; but it is vague, like a breeze among flowers.”

Helen says, “I really care for nothing in the world but liberty, liberty to grow mentally and spiritually, untrampled by tradition and arbitrary standards.”

Helen says, “Everything has its wonders, even darkness and silence, and I learn, whatever state I may be in, therein to be content.”

You hit the loop pedal one final time and the theme song plays its refrain, “Wonderful star of light wonderful star of light wonderful star of light…”

You are done. you look up into the audience, then crawl stage left as if you will exit, but stop at the edge to sit and apparently observe the strangely calm cycling of looping fragments. The soundscape grows louder while the lights, almost imperceptibly, grow brighter, until the stage and the audience are drenched in artificial light.

Crescendo.

Whiteout.

THE END

Star of Happiness promo shot. Godin in silver and black bent over loop pedals on the floor. Cathryn Lynne Photographer.

A Girl Can Never Have Too Many Boys…

Especially when that girl is me!
Last month I was asked by the wonderful David Harrell at Alliance for Inclusion in the Arts to be in his short film that was to be submitted to the 2015 48 Hour Disability Film Challenge.
The genre for all participants was romantic comedy, so with several more guys than girls on our team and more than one disability, “The Kerfuffle” turned out to be a rather strange incarnation of the genre!

Watch me be a romantic lead in our wacky 5 minute short film…

And you can read an article, which includes an interview with me, about “The Kerfuffle” and the disability Film Challenge HERE!

The Igor & Millennium Guide Dog Fund

As many of you know, my dear guide dog Igor passed away very suddenly last September. I knew almost immediately that I had to make some good come out of this terrible loss, so I decided to raise funds for the Animal Medical Center, which did so much for him throughout his short life and so much for both of us during his last few days. Then, less than a month later, I received news that my first Guide Dog, wonderful Millennium, also passed on, and The Igor and Millennium Guide Dog Fund was born!

The Igor & Millennium Guide Dog Fund

If you have already given, thanks so much!
If you have not yet given, please know that every little bit counts…
The Frank Lloyd Guide Dog Fund at The Animal Medical Center in New York City provides routine and emergency care to guide dogs, free of charge. The fund is always giving out more than it receives,
Please help us keep this vital service going in loving memory of:

Igor GuideDog (2009-2013) & Millennium I (1999-2013)

These are our stories…

Igor was an amazing dog in his smartness and sweetness. He was one of those rare creatures who comes into the world beautiful and leaves it beautiful. He did not degenerate like the rest of us. My dear friend Artemis suggested that he was my bodhisattva, a creature of light who suffered this life in order to teach me and then was released into the energy of the universe. We only had two years together and still it is hard for me to imagine another guide dog in my future. But, as many of you know, he did have a predecessor…

Wonderful Millennium, my first guide dog, also passed away this fall in the arms of his little mistress Isabel. He was just shy of his fourteenth birthday. When he was no longer up to the task of running me around the streets of New York City, I gave him into the arms of an adorable family full of love and kids and chickens. Millennium and I had worked and played together for over 9 years. We went to Europe once, California many times, Memphis, Maine, Florida, countless shows, lectures, teaching gigs, performance gigs, bars, restaurants, etc.! When I was paired with him in 2001, I was just starting to lose my vision to such an extent that I found it hard to get around. Having him with me expanded my world immediately and profoundly. We had so much fun together. He helped me to establish the life and many of the friendships I have now.

Millennium was very rarely sick. He had a hearty constitution on the inside, though he was a bit of a princess on the out. (He loved soft beds, cookies and wearing pearls!) Still we very much appreciated the yearly checkups, keeping shots up to date, and occasional small emergency visits that were all covered by AMC’s Guide Dog Fund. Though they were both bred and trained to be guide dogs at The Seeing Eye, Igor & Millennium were as different as two dogs can be. And, because I went from being a visually impaired person to being a blind person during my years with them, my relationship with each was a totally different experience.

Igor was a rock on the outside. He would always lie in the middle of the floor, and would not so much as lift his head in rebuke when mommy tripped over him, which happened, I’m sorry to say, rather often! Igor was a goof at home and super focused on the job. He loved his SqueakYourBall, and he sure could catch — even wild mommy throws! Igor pulled mommy around like she was a rag doll. He was so strong on the outside, so imposing. Often teenage boys would jump out of our way announcing into their hands “Wolf! Wolf!” But on the inside Igor was fragile. He was allergic to 26 different environmental substances, from smoke to grasses to things that slough off humans– Yep, my dog was allergic to people!

As I’ve tried to make sense of the death of the young and seemingly healthy Igor, I can only think of it this way: for Igor, life was a drug that delivered a punch for every high. In the first month that we were together, he developed a giant nasty lip blister from his beloved Kong toy. That brought us our first course of antibiotics, anti-fungal, anti-bacterial drugs of what would eventually amount to perhaps twenty such courses in just two years. He had countless ear infections and terrible skin blowouts. He was allergic to chicken which he loved. Every time we would go play in a park or in our friends’ backyards he was pummeled by his system.

In his last few months, with the help of Dr. Macina and Dr. Palma, it seemed we had finally gotten his allergies under control. We would visit AMC every Sunday morning to get his allergy shot. Igor was also on some pretty serious steroids that we were hoping to wean him off of this fall. He was looking so beautiful — a super model dog, a prince as Igor’s buddy Benjamin said– but I believe that inside, his little system was perhaps being pushed to its limits.

Though the doctors at AMC tried everything, they do not really understand what happened to complicate a relatively routine surgery to the point where his internal workings fell apart. They all knew him and loved him and were deeply upset by their inability to save him. Because of the Guide Dog Fund, I was relieved of the burden of making any medical decisions based on finances, so I know that everything that could have been done to save Igor was done. Besides offering routine vet services, AMC is also a research hospital, which gives me hope that they also will learn something from Igor.

Please help AMC keep the guide dogs of New York City healthy so they can continue to live and work happily with their people companions, who need and love them!

Embracing Dissonance

WE won! The Star of Happiness is proud to announce that it will be a part of Horse Trade’s miniFRIDGE in the summer of 2011.  Thanks to all those who came out and supported, an huge appreciation to David Lowe for producing some perfectly weird video and to luckydave for helping with tech.  both of these super talented guys have agreed to help out with the final production which will be nearly an hour in length and a culmination of a couple of year’s worth of research inspired by Helen’s four year stint on the vaudeville circuit.

I sometimes worry about putting so much pressure on Helen’s time on vaudeville.  After all, it was a mere four years in the long and impressive life of a woman named one of the most influential people of the twentieth century and whose name has been household for over one hundred and twenty years, though admittedly I just met someone the other day who claimed never to have heard of Helen Keller(!), which was a reminder to never take anything for granted.  But her time on vaudeville, controversial and even scandalous as it was  at the time, affords a unique opportunity to think about the relationship between spectacle and performance, oddity and entertainment.  My research into Helen’s time on vaudeville prompted me to wonder about the roots of vaudeville and its “odd act” which vaudeville producers dubbed any act that did not precisely fit into the entertainment arts.  Sometimes these acts would be informative other times sensational.  The best ones were both.

Helen had a theme song called “The Star of Happiness” written especially for her by the man who also wrote “yes, We Have No Bananas”.  She was a headliner, performing only twice a day with a premium salary, whereas lesser acts performed up to four times daily in this continuous entertainment.  Ostensibly her act was informative, but it had enough to titillate and amuse.  It cannot be said to be free of the stigma of the freak show, and yet it gave her an opportunity to voice her controversial, generally leftist, opinions that had gotten her into trouble on the more conservative lecture circuit.  She was supposed by many to be a heavenly, not political, creature. 

What interests me in this moment is its potential to be a crucible for a number of volatile substances.  Disability is as unstable a thing as a person can handle.  I will consider myself a failure if my work looks anything like a celebration of overcoming obstacles or transcending adversity or the like.  This is not that, or if it is, it is despite my best intentions.  But neither is it a flippant parody, meant only to reveal the embarrassing connections between the odd act and the freak show, though this connection is part of what drives my interest.  There is no easy interpretation of the deaf blind body offered as spectacle to the masses.  Like it or not, she was performing as herself and her fame was securely wrapped up in her person.  She was not blind, pardon, to this fact and as I hope will be clear in other places on this blog and in my performance, she often found this crippling – more crippling in certain respects than the disabilities themselves.

When I tell people about this project the most common question is “what was her act?”  and well, that will be part of my act too, so I won’t give it all away, but I can assure you that, though wholly dependent on her being there live and in the flesh, it consisted of elements as old as performance and as transcendent and hacky as vaudeville itself.

Vaudeville producers made it a point of having acts as varied as possible so as to invoke in their audiences a constant state of alertness.  The dissonance that the heart’s and mind’s of the spectators experienced as they were carried from opera to monkey acts and from buster Keaton to Helen Keller, is precisely the mental state I would like to induce.  However, I, unlike vaudeville producers who might accidentally inform their audiences if they thought it entertaining, am more like Helen who would happily entertain en route to opening eyes.