The Blind Feeding the Lame: Growing Disabled with Dad * Essay & Live RISK Performance

This essay about the very different experiences my father and I had growing disabled first appeared at Catapult last June. I performed a storytelling version for a live taping of the Risk! Podcast, which aired in December in an episode called “Quality Time.” Scroll down for the performance followed by the essay.

I republish both versions here in honor of my father, Lee Goodin, who died a year ago tomorrow. It was, however,  a year ago today that I received the call that told me he was dying. My stepmother had used his phone to call and so when I answered, I was prepared to receive birthday wishes, but instead received her no-nonsense, nurse-practitioner announcement that he was in the hospital and not coming out. So my birthday on August 18th and his deathday on August 19th are forever linked in a two-day bittersweet celebration of life.

You can read more about my dad in my personal obituary for him and get a taste of his writing in this post that includes three of his many letters to the editor published in the San Francisco Chronicle. But for now, please indulge my need to tell you about our respective disabilities and the joy of sharing delicious food and booze no matter the obstacles…

Performance

Photo of Leona Godin on the large Bluebird Theater stage taken from the balcony. She stands alone with a mic and her cane, Moses, wearing black and sunglasses.

Essay

Now my dad is disabled. The military man, the world traveler, is in a wheelchair. A degenerative neurological disease has turned his feet into blocks, his hands into mittens. But we still can drink together, his blind daughter finding herself singularly helpful in these new circumstances. In his kitchen, where his wheelchair cannot fit, I slosh Beefeater into glasses, and, with directions called out from the dining room, I locate the pâté, the crackers, the Dijon mustard, the knife, and return to the table, not realizing that a strange moment of intimacy, such as we’d never shared before and will likely never again, is about to take place.

*

I barely knew my father from the time I was three, when my parents got separated and then divorced, until I was nineteen and surprised us both with a visit.

While I grew up in San Francisco with my mother, he was stationed in Thailand, Turkey, Italy and Germany. I saw him twice during those years. I believe the first time was when he and my mother signed their divorce papers, perhaps I was five, and we took a ferry ride in the rain to Sausalito. We went into a glassblower shop and that luminous fire magic took my breath away. He bought me a glass Cable Car and a bird. My mother drove him to the airport and I have a memory of waving to him until he disappeared. Immediately I crumpled to the floor, and I remember the feel of that Ford’s floor and the look of the child weeping as if I could be the protagonist and spectator both.

The next and last time I saw him as a child, I was nine. My grandmother died and he returned to San Francisco for the funeral with his new wife. Not long after that, I started losing eyesight. It was just the beginnings of the eye disease that would eventually make me blind. For decades after diagnosis, I was visually impaired, and it was as a visually impaired person that I met my father again, after several years of dwindling correspondence had resulted in us finally losing touch.

*

The night before we were to set out with our giant backpacks for a three month Euro-Trek, my best friend called to tell me that she had fallen off the wall at Ocean Beach. She’d been drinking a farewell bottle of cheap wine with her boyfriend when her hat blew off. Reaching for it, she’d slipped. “I hurt my knee,” she told me and said that it wouldn’t change a thing. It turned out she had torn a ligament, and that fact changed everything.

At that time in the early nineties, plane tickets to Frankfurt were among the cheapest, which is how we ended up flying into the city next to the town of Wiesbaden, where my father was stationed. Upon arriving in Frankfurt with my crippled best friend, in the early morning hours, with the lurid airport porn shops and bar that served us, the foreignness was overwhelming. They’d given me a wheelchair to push her and our packs around, but once we left the airport, how I’d get her anywhere came crashing down. I decided finding the bus to the Wiesbaden military hotel was the only viable option.

For the next two days, my best friend did nothing but lie in bed and moan. Once I tried to go out by myself but it was a disaster. My low vision made it impossible to carry out any plans, as I couldn’t read street signs or bus numbers or maps–this was long before GPS and iPhones helped to level the playing field for visually-impaired travelers. Although I’d had no intention of contacting my father, and probably wouldn’t have if my best friend hadn’t been out of commission, I’d agreed to take his number.

If large black letters were set on a small expanse of nothing–a 4X6 index card for example–I could still read using my peripheral vision. With a cigarette in one hand and trembling fingers, I dialed the number. I listened to the foreign ringing until the voice, somehow still unmistakable as my dad, picked up, and I said, “Hi Dad, It’s me.”

“Oh hello.” He may have even said, “Hi kiddo, what’s up?” Apparently unruffled.

I said, “I’m in your neighborhood and thought I’d give you a call.”

“What neighborhood?”

“I’m in Wiesbaden.”

He asked if I had plans for the evening. I looked over at my best friend prone on her little twin bed, and said that I was pretty open.

A year or two ago, after my dad was put in the wheelchair but before his chronic infections had progressed to where they are now, during one of our pleasant “liquid lunches,” I asked him if he’d had forewarning about my arrival from my aunt and uncle. It had suddenly occurred to me, after all these years, that his nonchalance could have been attributed to them mentioning my trip to Europe. He assured me that he had had no idea that I was coming, but that being career military primed him on being prepared to deal with unforeseen events.

On our first father daughter date, we went for dinner, which was a miracle of conviviality. We smoked and drank wine and talked as if no years had passed, no childhood lost. We held hands in the misty streets and he kissed me goodnight. Such is the strangeness of the human psyche, that the exhilarated bounding I did down the enormous, crystal-dripping hallway of the hotel built for international delegations–at that late hour empty but for me in my exuberance of finding a father–sits in my heart alongside one or two of the most romantic moments of my life.

*

After my dad and his wife retired, they moved back to the states, first to a tiny town in California’s Gold Country, where he became mayor, and then to his native San Francisco, where he still lives. As I turned from a visually impaired person into a blind person, my dad metamorphosed from an able-bodied person into a disabled person. The neuropathy progressed from the soles of his feet up to his knees, and from the tips of his fingers halfway up his arms, leaving him without sensation. When he stopped being able to feel the pedals of his Jeep, he had to give up driving. His wife continued to work as a nurse practitioner. She still works and goes to the theater and travels, while he has degenerated into helplessness.

They’d been accustomed to go on grand vacations for over thirty years–to more than a hundred countries and to all seven continents, and now she does these trips by herself. Putting my dad in what he calls “my kennel”–a small group home for elderly people in Pacifica.

It saddens me that for several years, my dad has spent his days sitting in his wheelchair, afraid to venture out alone, reading the newspaper and watching Netflix, all day while she’s at work. On more than one drunken occasion, he told me, “If I thought I could manage it, I’d shoot myself in the head.”

*

Nearly 1 in five Americans have a disability, and the vast majority are older people, according to the U.S. Census. When I was visually impaired, I never thought of myself as disabled–the very idea of it would have been insulting. As I’ve aged into my disability, both in terms of acuteness and familiarity, I’m proud of being a marginalized group on the rise. Proclamations of non-discrimination pertaining to diversity still do not often include disability, but that is slowly changing. Unfortunately my dad is of the wrong generation to benefit from this change. I hope to live to see it blossom.

Disability is the one variety of diversity that can strike anybody at any time, so why not prepare people to embrace it as difference rather than affliction? This shift in attitude will likely benefit you. At the very least, it may help you cope with your end of life disabilities, or those of your loved ones.

Having started on my road to disability at a young age, I feel strangely equipped to deal with what’s to come. In his 1911 essay “The Handicapped,” Randolph Bourne insists on the benefits of growing up and into oneself and one’s (dis)abilities:

When he [the handicapped man] has grown up, he will find that people of his own age and experience are willing to make those large allowances for what is out of the ordinary which were impossible to his younger friends, and that grown-up people touch each other on planes other than the purely superficial. … He will have built up his world, and have sifted out the things that are not going to concern him, and participation in which will only serve to vex and harass him. He may well come to count his deformity even as a blessing, for it has made impossible to him at last many things in the pursuit of which he would only fritter away his time and dissipate his interest. He must not think of “resigning himself to his fate”; above all he must insist on his own personality.

Even after more than a hundred years have passed since Bourne’s essay appeared anonymously in The Atlantic Monthly, it seems to me that we have yet some growing up to do. When will we finally recognize ourselves as precariously able-bodied, tending towards disabled, instead of constantly comparing ourselves to some mythical potent youth?

*

Last night my dad called to tell me that he’d made his decision. For almost a year he’d been facing the choice to either cut off the feet that keep getting terrible infections from wounds that do not heal because of his lack of feeling down there, or continue to get infections that will hasten his death. He reminded me that when we’d first had this discussion, I said to him, “The choice seems to be your feet or your life.”

It had struck me as obvious. But he’s resisted all these months, and yesterday brought finality. “I’m saving my feet and sacrificing me.”

Although the choice has been complicated by his weak heart that might not survive the amputation surgeries, it has always been more than loss of life that frightens him, I think. He prefers to die whole and intact. The idea of being footless would irrevocably launch him into the land of the disabled.

“No heroics,” his wife had told me last week, I think to prepare me. “He’ll go home and get what’s called palliative care.”

I was meant to understand that route was terminal. My dad confirmed it in a subsequent conversation.

“When do you go home?” I asked.

“Maybe a week, maybe a month,” he told me, “but don’t get your hopes up. It doesn’t look favorable. Don’t dwell on it.”

Between his nurse practitioner wife and his no-nonsense attitude all the conversations in the past weeks that touch upon his death, up to and including last night’s, have been singularly devoid of tears. It feels strange even to write about this finality with no surface emotion. I know that the loss of my dad will be painful, but I also know that he’s not been living the life he loves for a long time, and that the ground has been laid for all of us to let him go. Besides being world travelers, my dad and his wife had been avid skiers, avid theater goers, avid devotees of the good life, and I had, through many transcontinental cocktail conversations and on my bi-yearly visits, enjoyed that with him. I will miss our liquid lunches and our drunken conversations, but I know that he is already missing so much more.

*

I place the pâté, mustard, breadsticks, prosciutto, crackers, a knife, a plate, and lots of napkins on the table, my dad directing my movements. “There, yes, put it there. Open that prosciutto.”

He had once been a wonderful cook–the sort that took pleasure in serving up multi-course meals for ten or twelve intimates–and so this fumbling with food in front of him provokes more than a little self-consciousness. I do my best with the butter knife to slice the thick Trader Joe’s plastic, muttering a narration of my efforts, though he can see my progress perfectly well. I finally get a hole in it and rip the rest. “Now what?”

He informs me that the prosciutto must be wrapped around the breadsticks, like flesh over bone, and we get to work.

“Ah, shit” he says, and I hear a delicate snap. These are dainty breadsticks, no thicker than my pinky. Without feeling in his hands, all digital movements must be guided by sight alone with no tactile input. Hence, it’s awfully easy not to know one’s strength in the way of breadsticks and crackers.

I on the other hand complement this lack with my tactile-heavy relationship with the world. I ask if I can make him one, and he agrees.

I take a thin breadstick and a thin slice of prosciutto and dexterously roll it up. It is much easier than rolling joints or burritos. I hand it to my dad who smacks his lips. Then I make one for myself and I smack my lips. We continue for a few rounds.

I ask what the plan is for the pâté, and he instructs me to take a cracker, spread pâté on it and top it with Dijon. I do this and try to hand it to him. But, not being able to see, I cannot put it in his fingers, and not being able to feel, he cannot grab it without cracking it in two, so after a few frustrating attempts, and much pâté lost in the effort, we hit upon the expediency of me holding the cracker in the direction of his face, whereupon he grasps my wrist and shoves the cracker (and sometimes my fingers) into his mouth.

We do this over and over and the gin helps us forget the unsanitary way in which I grip the knife and thrust it first into the pâté  and then into the mustard and sort of push lopsided toppings back onto the crackers with my fingers, which, nine times out of ten end up in contact with my dad’s mouth. And each time he grunts his approval in a closed-mouth yum-yum kind of way, I know I will never forget the way he let me help him –at least for a few minutes–enjoy one of his last tastes of the good life.

“LEE GOODIN, SAN FRANCISCO” Dad’s Letters to the Editor, 2007

On the first anniversary of my father’s death, I’m grateful to my stepmother for sending me three of his letters to the editor, clipped from the San Francisco Chronicle. One of them—from August 19 , was published eleven years to the day before his death. It’s humor apparently hit the mark, as the editors used his words “erector set” to title the section. My dad was not alone in abhorring the proposed building sketches, he just said it best! This letter and the others remind me how much he changed in his last years, and how much he stayed the same.

Once, during one of our “liquid lunches”—sitting for hours drinking (and eating) in the window booth of Fior d’Italia—which we indulged in every time I visited San Francisco, he mentioned that he had an idea to put all his letters to the editor together and write a book around them. I encouraged him, but did nothing to forward the ambition. A couple years later, when he was feeling much more downcast, much more sedentary, and house-bound (except for Fior downstairs and the doctors), I asked him about the idea, and he shrugged it off as something that was no longer interesting to him, or no longer possible. I don’t know that I’ll ever be able to fulfill that particular book idea, but at least I can share his words here.

In the three letters from 2007, his interests range from the homeless to the monstrous aesthetics of a planned skyscraper to expressing his fears about a radical conservative court—a painfully prescient thought.

In these concise bits of his politics, my dad’s witty and reasonable voice talks to me from his tumultuous watery grave in San Francisco Bay, reminding me that, although in his last years he took little pleasure in the arts or travel that he’d once loved so much, he never stopped thinking about politics at the local and national levels.

To be sure, since 2016 at least, things were going in a direction that once would have made his blood boil, but at the end just kept his mental state set to a slow burn. The upshot being that his impending death seemed less dire than it might have if Trump had not soiled the White House.

My dad had his opinions till the end, even if he lost some of his fighting spirit. As you can read in my personal obituary for him, or in this essay I wrote a few months before his death. In his last years, his body made war on him, and there was not a lot of energy left for politics. Even so, his interest could not be extinguished. There was at least enough curiosity to know how bad things were going to get him out of bed every morning—despite the considerable pain—and into his wheelchair. Then he’d belly up to the dining room table, where he’d spend hours grumbling and griping over the newspaper in his endearingly grumpy way.

LETTERS TO THE EDITOR – MONDAY, JULY 9, 2007

Battle of the activist courts

Editor – August Goddard’s comparison of a “conservative activist” court with a “liberal activist” court is a typical knee- jerk reaction by those who would have us return to some dark medieval fantasy world (Letters, “The Supremes and ‘a living Constitution, ” July 6).

The liberal court always moved our country in the direction of more civil rights more freedoms. A court unlike the Bush/Cheney-appointed court that will be chipping away at those hard-won rights and freedoms for the next 20-to-30 years. I hope Goddard enjoys living under a Constitution rewritten by the extreme religious right. I shudder at the thought.

LEE GOODIN
San Francisco

LETTERS TO THE EDITOR – Sunday, August 19, 2007

An Erector Set

Editor – Regarding the Transbay Terminal high-rise proposals: Unlike John King, The Chronicle’s urban design writer, I guess I don’t understand what the neighborhood needs.”

His selection, the Rogers design, looks like the contractors forgot to remove the construction elevators-giving it an “erector set” appearance, and the thing on top looks like an apparatus in Dr. Frankenstein’s laboratory.

The other two designs look like screwdrivers and would give the city a San Diego-look—the locals call their downtown “the toolbox” because the Rogers Stirk Harbour buildings all look like chisels and screw- drivers standing point up (except one that looks like an electric shaver). At more than 1,200 feet in height, any of the proposals would become a tempting “terrorist target.”

LEE GOODIN
San Francisco

LETTERS TO THE EDITOR – Tuesday, December 25, 2007

Advocates aren’t helping

Editor – Regarding “If you want to help the homeless, just say yes,” by C.W. Nevius (Dec. 23): Once again, the Homeless Coalition and other so-called homeless advocates prove themselves to be part of the problem.

Are they professional “do-gooders” whose own means of support relies on maintaining a homeless population? Or are they amateur “feel-gooders” who are clueless as what needs to be done other than handing out blankets and passing out turkey sandwiches? Homeless and poverty have become buzzwords to cover a variety of individual situations. A family temporarily homeless because dad was “downsized” or they had catastrophic medical bills is different than the individual described in the column. He was homeless in front of a liquor store that cashed his check (for a price) and then gave him the remainder in bottles of cheap booze. In the first instance, normal social services can help the family to recover; there is an assumption that they are willing and able to be helped. In the latter case, the chronic alcoholic (who had an income) needed some “tough love”: detox, placement in one of the mayor’s full-service hotels and on-going rehab. Instead, he ended up dead. Nice going, homeless advocates.

Care Not Cash needs a big dose of tough love to get the chronic homeless off the streets and into appropriate settings to deal with their myriad problems. If it takes changes to the law in order to move them off the streets into appropriate environments, then let’s get busy on legislation that will do just that.

LEE GOODIN
San Francisco

A Personal Obituary for My Dad, Lee A. Goodin, February 5, 1940-August 19, 2018

My dad, Lee A. Goodin, passed away into other realms on Sunday. He’d been fighting so many illnesses for several years, and yet I hadn’t seen the cardiac arrest coming. Somehow, I thought I’d have warning. Yet he had given me warning.

Earlier this summer, he told me he’d decided to stop aggressive care for the infections that riddled his body from wounds that would not heal. I wrote about that decision, as well as our history of separation and reacquaintance, for Catapult in “The Blind Feeding the Lame: Growing Disabled with Dad.”

I wanted to show that essay to him, to show my love and that he would live on in my imagination, in my writing, and of course, in my heart forever, but I was a chicken. I was afraid he wouldn’t like how personal, how intimate, it was, and so I never sent him the link. I will never know if I made the right decision.

The fact remains that I have written about my dad and will continue to do so.

He once told me that he thought there was a great American novel in our family somewhere. He liked that I was a writer, but did not particularly care for the kind of writing I did. He loved his bestselling Kellermans, and I have not yet brought myself to read one of those. I will now though.

If there is a great American novel in our family, then there is no one else to write it but myself, because our family, at least for a couple generations, has dwindled down to me. He has cousins, who I’ve met through the wonders of Facebook, but my father was an only child and so am I. My parents were divorced when I was very young and my dad remarried, but did not have other kids. My family, my next of kin on my dad’s side, is now gone. And I, being childless, will provide no more.

My dad, Lee Goodin, with chickens in Visitacion Valley, San Francisco, early 1940s.My dad’s mother, Leona Goodin, née Beynon, and her husband Alcidos Goodin, née Godin, likely would have had lots of kids, but Alcidos, a construction worker who helped build the Golden Gate as well as the Bay Bridge, fell off the Rincon Annex, the old main post office in Downtown San Francisco, and died four days before my father, his son, was born. Between that and the fact that the first few years of my dad’s life were lived in wartime, there was something tragic about his early stars, as testified to by the wartime photo of my dad with chickens in the wilds of San Francisco.

However, he grew up as the darling only child, and would enjoy a wonderful life, traveling the world, skiing, drinking, eating, trekking around seven continents.

A man doesn’t need religion or spirituality to be loving and generous

A couple years back, he and my stepmother Terry celebrated their 35th wedding anniversary in their North Beach home next door with their extended Fior d’Italia family that includes the owners, the wait staff, and the revolving musicians of the jazz band that plays there every Wednesday and Sunday. The bandleader asked, “What’s the secret to your successful marriage?”

My dad, sitting in his wheelchair, Beefeater in hand, said, “world travel, fabulous adventures, and great sex!”

My dad was an irreverent and irreligious man. If I write that novel of our family, at the heart of it would be the atheism gene that I inherited from him. He had no religion, and in fact was rather anti-religion. One of his favorite movies, or at least one that he liked to talk about a lot, was Spotlight, about the Catholic Church’s cover-up of priests’ who couldn’t keep their robes down. Even that sentence sounds like something he would say.

But a man doesn’t need religion or spirituality (which he also scoffed at) to be loving and generous.

Once, at Fior, I asked my partner Alabaster to give some money to one of the waiters to buy a bottle of wine for the table. I think it was Gil, who, when he saw Alabaster’s intent, put his hands up and backed away as if he were looking at a gun rather than a couple twenties, saying, “Oh no, not Lee’s table.” In other words, if my dad was there, he was buying.

I now live in Denver, so there’s not much I can do in this strange limbo time before the services–which will be held on Labor Day weekend–but think and write about my dad, and celebrate who he was as a living being, and what he means as a spirit in me.

When my dad went into the hospital for one last short trip, I happened to be reading Zen and the Art of Motorcycle Maintenance for perhaps the fourth or fifth time in my life. Yesterday I came to the end and the afterword, where Pirsig drops the bomb about how his son Chris, who made the trip cross country in the book’s narrative, had been stabbed outside the Zen Center in San Francisco just five years after the book had been published. The part where Pirsig wrestles with the question of where his son Chris went took on new meaning for me. My dad, like me, believed in only this one life, but perhaps he could get behind Pirsig’s idea of the pattern of a person:

What had to be seen was that the Chris I missed so badly was not an object but a pattern, and that although the pattern included the flesh and blood of Chris, that was not all there was to it. The pattern was larger than Chris and myself, and related us in ways that neither of us understood completely and neither of us was in complete control of.

Now Chris’s body, which was a part of that larger pattern, was gone. But the larger pattern remained. A huge hole had been torn out of the center of it, and that was what caused all the heartache. The pattern was looking for something to attach to and couldn’t find anything. That’s probably why grieving people feel such attachment to cemetery headstones and any material property or representation of the deceased. The pattern is trying to hang on to its own existence by finding some new material thing to center itself upon.

My dad, Lee Goodin, and I, in a post-dancing pose, at his 60th birthday bash in Amador City, where he was mayor!I think my writing this as well as all future generations of writings about my dad, attempt to continue the pattern that is and will always be my dad, Lee Goodin.

Peruvian gold

It was the spring of 2017 when Alabaster and I visited and my dad, not yet imminently dying, but also aware that he was not going to have a long time to live, asked if there was anything I wanted. Terry and he had been collecting wonderful objects from around the world for years, but he was, I understood, referring to the things he’d inherited from uncle Art, his mother’s younger brother, who’d been like a father to him, who had been an engineer in the gold mines of Peru.

Remembering the glimmering little figurines that I’d so often seen at Uncle Art’s that sat in a lighted display box of a gold bird and a gold man, I mentioned those. I’m blind now, and hadn’t seen them for many years, and I’d never touched them. My dad directed Alabaster to take them down from the shelf. They were in plastic domes, and we pulled them out. I almost crushed the little man when I tried to pick him up because I never realized they were hollow. They had seemed so solid when I was a child. I’d never suspected they were made of very delicate hammered gold.

It was a strange time to be bequeathed something so valuable. Alabaster and I were basically homeless. We’d left New York and were moving around, staying with friends and family, deciding where to settle next. For almost a year, I lugged these priceless weightless and bulky heirlooms from California to Colorado to New York and back around again, with my dad periodically asking if I’d found a safe place for them.

And, being a researcher at heart, I wanted to know about these things, so I started shooting off emails to museums and appraisers, and getting either no response or non-committal ones that sent me somewhere else.

Finally, we found a Pre-Columbian art appraiser in England, and sent off about twenty photos of the little bird to her.

Two days later, we received the valuation and its notes. ” These animal and mostly bird sculptures came out of a workshop in Lima which was active between the 1950s to late 1960s run by an Italian expatriate,” and was worth about $10-$20.

That was in April, and we went for our last visit in June. I’d alluded to what I’d finally found about the statues, or what had become of them, over the phone, and told him I’d tell him all about it when I saw him in person.

Peruvian "gold" bird, my inheritance misfire from my dad Lee Goodin.

He wasted no time in asking. On our first lunch in our usual table at Fior d’Italia. He said, “So what happened to the statues? You still have them?” He thought I’d sold them, which I might have, or I might have tried to get them back down to Peru, where they belonged. I didn’t know, but the point was now moot.

I took a big breath, put on a big ironic smile, and told him about the appraisal. Alabaster said his face showed shock. Then he expressed doubt that Art, a gold minor and amateur archaeologist, would have been duped about buying fake artifacts. And I said what I’d been thinking. “None of us asked about them. We just all assumed the beautiful little sculptures were real gold Pre-Columbian artifacts, and he let us keep on thinking that.”

Then my dad laughed, and said, “Ah, that old bugger. I bet he’s laughing at us all right now.” It was the only such indulgence I’d ever heard my dad make about some possible afterlife. Then he told us about how Art liked to play jokes on people, and that sounded familiar. He and my aunt Evelyn also did not have kids. They were my only relatives on my dad’s side that I knew growing up, after my Grammy Leona had died when I was ten.

At the end of the Peruvian Gold conversation, I asked if maybe I could choose another heirloom, like “what’s behind curtain number 3, cuz I got a dud,” and we laughed hard at that. It was a very good last visit.

Under the bridge

My dad, Lee Goodin, and I on a boat on the San Francisco Bay.As I said, my grandfather Alcidos was a construction worker whom my dad never knew. He had been born in Minnesota to French Canadian Godins, who were one of the original Acadians who settled in Canada in the 17th century, and then were displaced when the Brits took over. Some of the Acadian Godins moved to Quebec–if you play guitar, you may have heard of the Godin maker, and others moved down to Louisiana to become Cajuns. Others moved south into Maine and then westward, as my Godins did, and settled in other parts of the US. My Godins settled in Minnesota, which is where Alcidos Sinai Godin was born in 1910.

At some point in his travels from Minnesota to San Francisco, Alcidos added another “o” to Godin to make it Goodin, because, as the stories have it, he was tired of being called God in, rather than the French way, which pronounces it like French sculptor Rodin.

If you were wondering why my dad is Goodin, and I’m Godin, it’s because, with his blessing, I reclaimed the French spelling. That said, he never got used to me taking my middle name, his mother’s name Leona, for my primary name.

I wrote a fanciful tale about all this, called “Likenesses: A Family History Through Photos, Real and Imagined,” which was originally published at FLAPPERHOUSE. I brought the zine to him and he read, with me next to him. When he’d finished he said, Katerina wasn’t a seamstress, she was a barmaid.

My dad wanted to be cremated and strewn into his beloved San Francisco Bay, under the bridges his father helped to build. I’ll be traveling back to say goodbye to him for that ceremony on September 1, followed by a celebration of his life at Fior d’Italia on Sunday September 2. His band will be there to play his old favorites, which, tended towards the dark. He loved his lighthearted musicals, but he also loved “St. James Infirmary,” and would delightedly snap his fingers to the macabre lyrics every time.

I miss and love you dad. See you on the Bay.

 

My Pitch Video and Application for the Holman Prize for Blind Ambition 2018

I learned about the Holman Prize from my Friend Laurie Rubin last year, but did not have the time, nor a clear project to pitch, but this year I was ready and waiting!

I managed to talk Alabaster into being my videographer, and we learned so much in the filming and editing of this little video, that I’m pleased to leak the possibility of some Alabaster Rhumb music videos coming soon… Speaking of Alabaster’s music, it is his song “Bird in a Tree,” that plays in the background of my Holman Pitch video, sped up and with a French horn taking the vocal line.

I also enlisted my long-time film collaborator, David Lowe, to help with the audio described intro sequence, but he went far beyond the call of duty by adding magic to our final cut, including somehow making our rather uninspired hill appear truly golden!

And without further delay, I urge you to watch, and like (the social media winner is guaranteed a spot in the final round of the competition), our 90-second Holman pitch video:

 

What is the Holman Prize?

The Holman Prize is the amazing brainchild of Lighthouse for the Blind and Visually Impaired in San Francisco, which was coincidentally the first blind organization I ever had anything to do with, as I grew up and started losing my vision in that city. For a little more on those early days of visual impairment, check out In the Beginning Were the Eye Doctors.

In fact, I even volunteered one summer at their Enchanted Hills Camp, which was partially destroyed in the recent California wildfires, so please consider a donation to that worthy summer camp for blind and visually impaired children and adults.

Last year was the first of this annual international competition, which awards up to $25,000 to each of three blind or visually impaired winners to help them make their dream projects come true. Here’s a short video about the 2017 winners:

The pitch video is the main component of the first round of the Holman Prize competition, which also includes a written application with short answers that helps to give context to the video, and introduce the candidate and her project.

So I thought I’d include some of my application answers here, just in case you also would like to have my pitch video contextualized!

Enter the basics of your project and give us any details that aren’t in your video pitch. Max 200 words.

Aromatica Poetica is my new magazine dedicated to the arts and sciences of smell. It is not especially for blind people, but, as a blind person connected in the community, I will encourage blind and visually impaired writers. Thus, the annual writing contest is vital to this project, which seeks to offer an alternative to sight-centric writing.

With the Holman Prize, I’ll be able to publish the first issue and have a launch party. I feel confident that after that initial issue, we’ll be self-sustaining and eventually profitable. The advertising possibilities are endless: fragrance, wine, spices, sweets, coffee, tea aromatherapy…

The trip component is inspired by James Holman, and will seek out strange new smells–from flowers and wine to volcanic rock and olive oil. It will provide the fodder for the feature story for the inaugural issue of Aromatica Poetica.

In the making of this pitch video, I’ve developed a healthy appreciation of audio description. I would have liked to provide more, but 90 seconds is not very long. For you blind judges out there, please know that I’m toasting you with a lovely-smelling glass of red wine at the end, and that accessibility is always on my mind.

Tell us a little about yourself: write a short bio, tell a funny story, tell us about your passions, or do whatever you like! We want to know who you are. 150 words.

I received my PhD from NYU in 18th century English Literature, then promptly turned around and wrote and produced two plays: about Helen Keller’s time on Vaudeville, and about the sexy history of the invention of braille.

As an actor, I’ve landed a national commercial as well as other smaller gigs. As a writer, I’ve written for O Magazine, just sold a story to Playboy, and have work in many less notorious literary and commercial publications. As a publisher, I’ll be able to encourage diverse voices and aesthetics.

Smell, “the fallen angel,” as Helen Keller put it, has become a passion of mine since metamorphosing from visually impaired to blind, and I want to share that passion. Smell needs vocabulary and great writing–fiction, nonfiction, poetry. The underdog sense can expand the world of blind and sighted alike, and Aromatica Poetica is here to help!

If you plan to travel, please enter those locations in a simple list.

France (Paris, Bordeaux, Grasse), Italy (Florence, Sicily/Mount Aetna), Greece (Athens), Bulgaria (Kazanlak/Valley of the Roses), Turkey (Istanbul).

Please tell about your visual impairment (100 words).

I have a cone rod dystrophy that started when I was ten, which has, very slowly, pushed me along the sight/blindness spectrum from normal sight to near complete blindness. Most of my life was spent as a visually impaired person, but in the past few years–perhaps 5 or six, I have considered myself a blind person, as I have no usable vision. These days, I can see an occasional chink of actual light in my far periphery, but other than that, it’s all kinds of pixelated snow fuzz with occasional hallucinations, courtesy Charles Bonnet Syndrome.

Ok, that’s it! What do you think? Before you decide, I suppose I should invite you to check out my competition

Cheers to all the blind ambition in the world!

Aromatica Poetica, My New Magazine Dedicated to the Arts & Sciences of Smell

Aromatica Poetica combines our love of literature with our love of smell in a colossal endeavor to promote and celebrate the oft-disparaged sense, the “fallen angel,” as one of our inspirations Helen Keller named it in her attempt to raise it.

We hope to give beautiful language to a sense that is usually denied literary efforts, and in such a way, to prioritize the sense of smell and by extension taste, so that people with different perceptual experiences can revel and write freely about the senses they know intimately.

A humming bird drinks from a martini glass of honeysuckle.As Keller writes, “We should not condemn a musical composition on the testimony of an ear which cannot distinguish one chord from another, or judge a picture by the verdict of a color-blind critic. The sensations of smell which cheer, inform, and broaden my life are not less pleasant merely because some critic who treads the wide, bright pathway of the eye has not cultivated his olfactive sense.”

And as Proust writes, “But when from a long-distant past nothing subsists, after the people are dead, after the things are broken and scattered, still, alone, more fragile, but with more vitality, more unsubstantial, more persistent, more faithful, the smell and taste of things remain poised a long time, like souls, ready to remind us, waiting and hoping for their moment, amid the ruins of all the rest.”

Between and amongst these voices Aromatica Poetica plays.

Our founding editor, Dr. M. Leona Godin, has lived on pretty much every band of the sight-blindness spectrum, and has, in recent years of increasing blindness, come to be very fond of the sense of smell. Some books that put her over the edge in terms of realizing that a magazine such as Aromatica Poetica should exist include: The World I Live In by Helen Keller, Aromatherapy by Keville and Green, Proof by Adam Rogers, The Emperor of Scent and The Perfect Scent by Chandler Burr, Perfumes by Turin and Sanchez, and Perfume by Jean-Claude Ellena, as well as novels such as the famous In Search of Lost Time, Perfume: The Story of a Murderer, The Language of Flowers, and the linked story collection Beasts and Children.

Perfumer & Flavorist, which caters to professionals in the industry, has also provided much fodder for thought. From interviews with scent and flavor artists to investigations of molecules, the magazine has helped to crack open the previously top-secret, almost magical, world of perfumery and flavor, that most lay people do not even know are so closely related and intertwined.

We join these and other adventurers in shedding light on the science as well as the aesthetics of perfume, flavor, and olfaction.

Visit our Submissions page to contribute!

Revisiting the Tremé By Way of ‘Treme’, #52essays2017

I’m a little late to the party, but then again I was sort of early too. I just started watching the HBO show treme, and I love it so much, I don’t allow myself to binge watch. I save it for a good ole romp on the treadmill—one episode a day, if I make it to the treadmill. The opening credits get me going every time.

But it was episode 5 of season 1 “Shame, Shame, Shame” that provoked me to write. Thanks to the great sound design, the second line scene—before the shooting—was viscerally what I remember my life in New Orleans being. It was so full of brass that you felt your head would blow off in the wind–the closest thing to a punk show I’ve experienced since my few punk shows back when I was a kid. But the shooting felt real too. Treme does a great job of depicting so much that is beautiful and scary and totally out of control and special about New Orleans.

My best friend Indigo and I moved to New Orleans in 1996, just two years after New Orleans infamously broke the record on murder. “Nov. 29, 1994, is the day the murder record was broken in New Orleans. There were 28 more murders before the year ended,” according to NOLA.com. I was vaguely aware of the dangers of the city that I bragged to my California friends was the closest thing I could get to a third world country and still be in the united states—and that was before Katrina and her aftermath that is depicted in Treme.

It would have been impossible to not notice that instead of goodnight or have a good one people said, “Be careful.” At the Circle K down the street from us, at the bars when you were leaving, at the corner store, everyone said, “Be careful.” Perhaps it was because we were two pretty naive white girls living in a predominantly black neighborhood on the other side of Ramparts from the French Quarter, but I think it was also a sign of the times.

I suppose I should mention that I can’t see a damn thing of the show, and my memories of New Orleans and the Tremé are of a time when I could see pretty well. I was visually impaired, so there wasn’t always a lot of detail, and I couldn’t read normal print, and I couldn’t recognize faces. But I could still see.

I could see our swimming pool with its hodgepodge of floaty toys and the banana trees that would grow before your very eyes. When Indigo and I first moved there, we just sat in that picture window smoking and saw those trees shoot up and sprout leaves and fruit. And I could see the crazy inhabitants of our little Shangri-La parade by: the strippers and the hookers and the punks and the gay gentrifiers and the boys next door (who were, like us, from California) and the French business guy.

And I could see the wacky architecture, eight apartments carved crazily out of two antebellum mansions and their carriage houses: ours was the downstairs ballroom-fronted apartment with two shoebox bedrooms stacked on top of each other in the back with odd vanity lightbulbs running from my room to Indigo’s above which she accessed with one of those iron spiral staircases that are made to go into tiny spaces, so common in Paris. And next door the boys lived in a five-story apartment that was just one room stacked on top of the other, starting with the kitchen and topped by a roof.

Our grand mansion was on the front side of the Tremé, if you think of the front as Esplanade, but on the backside if you think of the Tremé as the heart, which we did. Directly behind our pool was Little People’s, which was run by the family of Kermit Ruffins and it would burst with music every Wednesday night. You had to be careful upon entering, had to wait for the music to stop because the place was so small that the drums had to be set up right in front of the door.
And you’d go in and the place was packed and the horns were in your face and the beers were two dollars and the chicken necks were on the house and I just remember being there with a huge smile every time, thinking this is the real new Orleans, which seems to me to be the sometimes tongue in cheek sometimes painfully true motto of Treme.
If you’ve seen the show you know Kermit Ruffins is a fantastically fun entertainer and excellent trumpeter, but he was basically a staple in our lives when we were there. I can’t claim to have been a close personal friend, but we saw him play all the time, and he and other such legendary locals came to our ballroom apartment once or twice.

I couldn’t help but fall in love with the show Treme from the very first episode when Davis, who reminds me of 95% of my performer/musician friends—yes, I’m talking to you!–sees Elvis Costello, who appears as himself in the show, and tries to get Kermit to go up and introduce himself because it would be so great for his career, and all that, and he’s so hopping frustrated that he finally says something like, “Kermit, you’re telling me all you wanna do is get high, play some trumpet and barbecue in New Orleans for the rest of your life?” And of course Kermit’s like, “yep, that sounds pretty good.” And everyone laughs at Davis’s expense.

Well, some part of me agrees with Kermit and wishes I would have stayed in New Orleans at 1260 Esplanade, on the backside of the Tremé, and continued my simple Big Easy life. I worked at Degas House, the ancestral home of the painter Degas’s creole relatives turned bed and breakfast. I was its breakfast chef and every morning I rode my blue and yellow banana-seat bike up Esplanade and back. I made egg puffs and quiches and muffins for tourists. It was an adorable job, made odd by my visual impairment. And I almost didn’t go to New York, to grad school, because of that job and our cute little band, an all-girl punk band called “Down There,” with me on drums and Indigo as our front woman.

Recently I’ve been reading guidebooks and doing research for a story I’m working on, which is what led me to the show. It’s all brought my nostalgia for the Tremé and New Orleans to the foreground, but of course there’s the fact that I was in my twenties and still had vision, so my nostalgia is a little mixed up with those things too, which makes going back even more impossible for me than most. That’s ok, I listen to Treme.